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An E-rehabilitation Team Helps Caregivers Deal with Stroke
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Lisa Keaton, MSW, LSW1
Linda L. Pierce, PhD, RN, CNS, CRRN, FAHA2
Victoria Steiner,
PhD3
Karen Lance MS,
CCC-SLP4
Michelle Masterson,
PhD, PT5
Martin S. Rice,
Ph.D., OTR/L6
Julie L. Smith, MS, RD, LD, CDE7
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Geriatric Social Worker, Medical College of Ohio, The Center for
Successful Aging,
Toledo, Ohio
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Professor, Medical College of Ohio, School of
Nursing, Toledo, Ohio
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Assistant Professor, Department of Medicine, Medical
College of Ohio, Toledo, Ohio
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Director, Rehabilitation Services, Medical College of
Ohio, Toledo, Ohio
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Assistant Professor, Medical College of Ohio, School of Allied Health,
Department of Physical Therapy, Toledo, Ohio
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Associate Professor, Medical College of Ohio, School
of Allied Health, Department of Occupational Therapy, Toledo, Ohio
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Clinical Dietician, Firelands Regional Medical Center, Sandusky, Ohio
Citation: Keaton, L., Pierce, L.,
Steiner, V.,
Lance, K., Masterson, M., Rice, M., Smith, J.;
An E-rehabilitation team helps caregivers deal with stroke. The Internet Journal of
Allied Health Sciences and Practice. October 2004. Volume 2 Number 4.
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Abstract
Objective:
The purpose of this report is to present the findings from a secondary
analysis of email questions from adult caregivers of persons with
stroke directed to a nurse specialist and members of an electronic
(E)-rehabilitation team. This analysis explored what caregivers new to
the role asked in dealing with the outcomes of stroke.
Materials and Method:
Thirteen caregivers submitted questions and had them answered through
use of Caring~Web©,
a web-based intervention for caregivers of persons with stroke. Data
were gleaned from email messages on Ask-the-Nurse, a one-on-one
discussion with the nurse specialist, and Caretalk, an email
discussion with the entire group. These data constituted the content
for the qualitative analyses. QSR N 5, previously known as
NUD*IST, was the qualitative data management program used to
enter, track, explore, code and search all narrative data.
Results:
The caregivers’ questions centered on: 1) medication management (19%),
2) community and government services (23%), and 3) stroke and related
issues in dealing with stroke (58%). These findings, using
Friedemann’s framework of systemic organization
as a guide,
indicated that the caregivers were seeking new knowledge
[individuation in Friedemann’s terms] along with supporting one
another [coherence], as they sought to maintain themselves and their
care recipients [system maintenance].
Conclusion:
These are important topics for which information was needed as
caregivers sought to maintain themselves and their care recipients in
the home.
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Keywords and terms:
Internet, rehabilitation team, CVA, caregivers, support, education |
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Acknowledgements:
The caregivers are thanked for their participation in this
project. Lawrence H. Horn, MD, Professor, and Gregory Bartlett Siegel,
RPh, CGP, JD, pharmacist, at the Medical College of Ohio and Amy Govoni,
MSN, RN, CS, Associate Professor at Cleveland State University are
acknowledged for their work, as members of the E-rehabilitation team.
Teresa Cervantez Thompson, PhD, RN, CRRN-A, Assistant Professor at
Oakland University and Marie Luise Friedemann, PhD, RN, Professor at
Florida International University are credited for their work as
consultants for this project. This research is supported by grant RO1
NR07650, National Institute of Nursing Research, National Institutes of
Health. |
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